“Uttar Pradesh’s Brave Soul: Rohit and the Battle Against ‘Brittle Bone Disease'”

A 12-year-old boy in India, known as the ‘glass bones’ child, has experienced more than 100 bone fractures due to his rare condition, osteogenesis imperfecta, commonly referred to as ‘brittle bone disease.’ Rohit, residing in Uttar Pradesh, grapples with one of the most severe cases of the illness, making even the slightest touch a potential cause for bone breakage. This condition has not only restricted his ability to play with other children but has also resulted in stunted growth, with Rohit weighing only 15 kg and standing at 17 inches tall.image

Starting his day with numerous challenges, Rohit wakes up unable to complete many tasks without assistance, relying heavily on his mother for support. Despite having two older siblings, Rohit is the youngest among them.

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imageDespite the significant hurdles posed by his condition, Rohit harbors dreams of becoming a singer as he grows up, determined not to let his illness thwart his aspirations. While there is no cure for osteogenesis imperfecta, individuals coping with the condition can seek treatment to safeguard and strengthen their bones. However, the accessibility of many new treatments remains limited in the developing world.

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Captured in a poignant photo, Rohit is seen brushing his teeth, adapting to his circumstances despite the severity of his condition. His older sister plays a vital role in teaching him to read, and he endures considerable pain throughout most of the day.

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